“The Roar within the Rift” by Alana Dorris

TW: Eating disorder, sudden loss  

I begin with one of my favourite quotes I found when I first connected to the Gifted communities and for the first time in my life felt seen, then mirrored. I hold it close in mind as I live out my life. It reminds me that there can be deep meaning even in a complex existence, when you open yourself up to nuance:

In my darkest night,

when the moon was covered

and I roamed through wreckage,

a nimbus-clouded voice

directed me:

“Live in the layers, 

Not on the litter”

Original portion of quote by Stanley Kunitz

Gifted Mindfulness Collective (reshared portion above)

I came to Australia due to sheer luck, a leap of fate, a networking opportunity, a chance. But I presented as a half-drawn figure. Perhaps I was then. Behind an inconspicuous nod, a smile, a handshake, stood the unseen fuller picture, a then undiagnosed neurodivergent human, someone with a history of Anorexia Nervosa, a lot of self-esteem issues, self-doubt and great losses to come.

In this blog, I share my journey as a PhD student and Research Assistant navigating the pressures of academia alongside identity struggles and multiple forms of grief, including disenfranchised grief. This includes the loss of identities I once held: the identity tied to my PhD when I withdrew, my athletic identity I lost during my eating disorder, and discovering I was neurodivergent in my adulthood. I also endured the tragic and traumatic deaths of my partner, also an academic, from metastatic cancer within 4 months, and my sister, that same year, in a hit-and run accident, which led me to grapple with cumulative and complicated grief. I reflect on what helped me move forward and begin to find myself in a secondary integration, after profound loss, amidst a layered and complex existence. 

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Chronic Pain, Lived Experience and Academia: An Interactive Journey by Tayla Barber 

When I first started working as a criminologist, my mom encouraged me to not disclose my disability to my colleagues or any potential employer. At this time in my life, I was 19 and I had suffered from Chronic Migraines for 5 years. This was advice I ultimately decided to ignore. While the advice came from a place of love, experiencing chronic pain is a core part of who I am and not something I can change. Pain is part of my life every day. Now, at 26, I have suffered from chronic pain for over a decade and have developed four other ongoing health conditions. 

Since working in academia, I have had a variety of experiences and responses related to my condition. This has included working with wonderfully supportive people on projects that have impacted state and national policy, as well as experiences of ableism. Balancing working in academia, completing my undergraduate and PhD studies, and managing my ongoing medical conditions has been challenging. Despite these challenges, working in Alcohol and Other Drug (AOD) research has helped me understand my own medical experiences better, and reflecting on my lived experience of disability and addiction has fundamentally altered my own research practice. Through this blog post, I hope to share some of the experiences and lessons I have learnt as a person living with disability working in academia and discuss the value of incorporating lived and living experiences into research practice.

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